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Meet our Students: Jesse

Here at the Deaf Academy many of our students have additional needs along with deafness. Eight year old Jesse, who has CHARGE Syndrome, has attended the Deaf Academy since the age of four.

Jesse was born in May 2010 – seven weeks prematurely – with multiple heart defects, and was diagnosed with CHARGE Syndrome at six months. CHARGE is an extremely complex syndrome which affects one in every 10,000 births, and for Jesse it comes with the challenges of severe hearing loss, impaired vision and mobility difficulties.

Throughout his early years Jesse and his parents faced misdiagnoses and uncertainty about his future. In September 2014 his parents, Rachel and Joe, decided to move to Exeter from London so that Jesse could attend the Deaf Academy.

On arriving here, Jesse was unable to walk, didn’t interact with others, and didn’t know how to play – but this quickly began to change. After just two months at the Academy, which included one-to-one physical and occupational therapy, communication development, stimulation and play, Jesse was walking down the corridor. Clive Fowler, a consultant with the deafblind charity SENSE, described Jesse as going from ‘a little boy who has waited for the world to act upon him, to a little boy who is willing to act upon the world.’

Rachel
Jesse's Mum
“It was important for Jesse to embrace his deaf identity and be in an environment rich in British Sign Language (BSL)... He has come on a huge amount. Every little achievement is absolutely amazing. It’s been very satisfying and has made the move worthwhile.”

Jesse is now able to walk and run independently, and loves to play. He is learning to communicate, including using BSL, and to eat independently, as well as further developing his mobility and engagement with others.

Joe
Jesse's Dad
“It’s been a huge relief for us, because we are safe in the knowledge that he is being looked after and is going to have a great future. That’s enabled us to relax and to enjoy him for who he is.”

Around 95 per cent of all deaf children are born to hearing parents, who often have no prior experience of deafness or knowledge of BSL. For many, this results in a disconnection from the world, leading to isolation and delayed development. Coming to the Deaf Academy allows young people like Jesse to access specialized support; they are able to learn British Sign Language, access occupational therapy, and are surrounded by a community of deaf peers, while their education and care is tailored to their individual needs and abilities.

Stephen Morton
Academy Director of Development
“Jesse’s development is a product of his own indomitable spirit, committed parents, and a team of professionals, from both within and outside the academy, working collaboratively to give him the best possible chance of a productive life.”

For Jesse, the new Deaf Academy will mean an even brighter future; one where his development, growth and quality of life are assured in a new, world-class facility for deaf education.

Meet our students...

Connor

“I can remember the day I arrived. I was sat in the corner texting my mum, ‘Oh my god, I don’t even know how to sign or communicate with people.’ But then something exceptional happened…”
Meet Connor

Molly

"Thanks to the Deaf Academy Molly has had the opportunity to discover and develop a passion for acting. She has found drama helps her express herself in a way that she hadn’t been able to before..."
Meet Molly